Amirah Lola Mae was born on January 13,2010 at 1:50 am. She was born about 12 weeks early. This is the ongoing description of Amirah's fight for her life, and her first year of life.
Tuesday, October 26, 2010
Amazing But Exhausting
Amirah has been home for almost two weeks, and so far so good.
It's been a crazy few days here in the Priester home. The day before Amirah came home from rehab Andy found out that he was being laid off due to lack of work on November 5th. Needless to say this has added a new level of stress to an already extremely stressful year. But being who we are Andy and I have been working hard not to panic (yet). He had already sort of been putting feelers out there and seeing what work might be available, so starting the day he found out about being laid off he has been very very aggressive about finding work. He actually had an interview that looked pretty promising last Wednesday and we hope to hear in a week or two. So please send a little prayer that way.
We were again forced to put our lives in perspective. So what if we don't quite now how our financial needs will be meet after November. We do trust that all will be provided for. The most important thing at this moment is that Amirah continues to grow, she continues to amaze us and continues to bring joy to our hearts and our lives every moment of every day.
It's so much fun to watch her happy little personality emerge. She is truly blossoming at home. She is a really happy baby and loves to play with me and her daddy. She almost always has a giant smile for us.... Like this
We have been busy since we have been home. We have had numerous doctors appointments, and in home evaluations. And had a few nights without nursing, which I don't have to even tell you how exhausting that can be.
But I don't want to make it sound likes its all been great. I was feeling pretty depressed on Sunday. The way I explained it to Andy was that I think the pressure of having a baby home with all the special needs that Amirah has right now hit me. When she was in the NICU there was a whole set of worries, but now that she's home there is a whole new set of worries...is she sleeping to much? is she not sleeping enough? is her breathing labored? are her nostrils flaring? are her vent tubes connected? did she de-cannulate herself? Is she pooping enough or to little? Is she developing the way she's suppose to? Is today the day that she will have to go the ER?..... the list goes on and on.
It feels a little bit like we are waiting for the other shoe to drop (again). I do feel lucky to have Andy as my partner through all of this. He is really good at helping me snap out of my wallowing in depression.
I guess there's not much more to say right now. Here are a few photo's from the past week....
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