No more night feeding!

So one the big things Amirah is going to try this week is not getting feed overnight. Until yesterday Amirah would be feed via her food pump all night long. We weaned to just 4 hours instead of 8, but last night I forgot to set my alarm to wake up and turn on her food pump. She did great overnight without being fed and after speaking with her nutrionist we have decided to try and stop overnight feeding. This is a big step and I am pretty excited for her.

Also, here is a video I made to day of Amirah. She is soooo close to crawling since coming off the vent during the day.

Trach Collar All Day!

Amirah is now off the vent 10-12 hours during the day!!!!! We are now set up to travel with no vent and we are soooooo excited!!!!

Here is a photo of how she looks with her new look :)

Now reporting from Austin!

So we have been here in Austin for almost 5 weeks. In so many ways it feels like we just got here (because basically we just did), but in a lot of other ways I can hardly remember what it was like before.

We found a great townhouse the first day we went looking. We have a great few off our back balcony of the Barton Creek Greenbelt. We are about 5 minutes away from downtown Austin and generally we are a short drive to lots of things. And as a bonus we are 2 1/2 miles from Andy's job! He generally comes home for lunch everyday and has the shortest commute of his life.

We haven't really started exploring the area too much but we are looking forward to experiencing all that Austin has to offer. Some of this can't happen until we have someone that can care for Amirah. And this, honestly, has been the worst part of moving. It's taken a little longer than we thought to get her nursing lined up and might not be able to get on nursing coverage until the second or third week of June :( We have place an add looking for an care giver that has some general knowledge of Amirah's needs, and we have had some good response. We are hoping that one of these people works out so that Andy and I can at least get out on our own a little bit.

I thought it might be a little harder to be home all day with Amirah with no help, but thankfully Amirah is doing so great that its really not that bad. I think the feelings I get by the end of the day are just the feelings stay at home parents just get. It is a help when Andy comes home for lunch because then I at least get some adult interaction in the middle of the day.

We now are working on ways to get a second car. We are so grateful that Andy does work so close to home, because on days when I really need the car I take him to and from and am able to have the car all day. I have yet to go to any Mommy's groups, but plan on attending some local ones very soon. Now that we are feeling more settled I am ready to meet more local people.

Amirah seems to be thriving! She is growing and discovering so many new things. She is completely off oxygen support while on the vent and is on the trach collar 8-10 hours a day. Her eating is slow going, but we hope to resume her therapies in June. She also now has 5 teeth and has sixth one about to pop through.

Its been such a change to move to Austin, but its still pretty exciting. My mother is coming for a visit in June and I am looking forward to having her here for the week.

I guess thats all for now. Next time I will post photo's.