Let's see...sorry for the delay in updating, just been a little busy.
Amirah's surgery went very, very well. On Monday morning we (me, Andy, and my sister Jessica, and my niece Olivia) got to the hospital about 8:30 or so. Amirah was awake and in a pretty good mood. Right before she was due to leave for the OR the Physical Therapist came and worked with Amirah. They PT totally relaxed Amirah, and she stayed asleep for the transport down to the OR.
Andy and I walked with the team and met with the surgeon and the team that would be there for her surgery.
We then met up with Jessica and Olivia. We knew we had about 3-4 hours until her surgery was due to be over so we all decided to go get some food and go to a moive. I know it might seem a little weird that we choose to go see a movie while our little baby was having surgery, but it was a great way to pass the time instead of sitting around worrying. We went to see Toy Story 3 and it was great.
We got back to the hospital about 3 hours after Amirah had gone in for surgery and just as we got there Amirah was coming back too... The anesthesiology told us that she did great. We were soooo relieved.
Amirah was still pretty knocked out (they had to give an extra dose of drugs because she apparently has a strong liver and had started to come to in the middle of the surgery).
We stayed with her for about another 20 minutes or so and then decided there wasn't much of a reason to stay. When we left she was resting comfortably and her vital signs were good.
She continued to do pretty well. She did have a few blood gases that weren't to great, so they increased her ventilator settings. We were expecting this so it didn't surprise us.
So for the first 2 days she was basically just sleeping. They hadn't started feeding her or anything. Her blood gases slowly got better. By Wednesday she was doing really good so the surgeon started her on some pedia-lite. By Thursday she continued doing great so they her back on formula. Her vent settings were almost back to were they were pre-surgery. Things were doing great.
They slowly increased her feedings and she continued to do great.
As of today, she is now on full feeds and her vent settings are back to what they were pre-surgery. Andy and I talked to one of her doctors today, and it seems like they will probably be contacting Blythdale tomorrow to discuss when Amirah will be transferred over there. This is much sooner than I thought this would happen and I am trying not to get to excited about it yet. I will keep you updated as more develops.
For other news about Amirah....she gets cuter and cuter every time we see her. When she see's us she gives us HUGE smiles. I am trying to capture one of them on camera, but they go quick :) We see more and more of her cute little personality coming out. Andy loves to watch her and really gets a kick out of her when she, out of the blue, will ball up and her face, cry and then give us a giant pout...I know we maybe shouldn't find this cute, but we really do.
I think that's really all for now... I feel a little bit like we are in a holding pattern at the moment. But am ok with it. I am just so thankful that this surgery wasn't a giant step backwards as we had feared it might be.
Thank you for the continued love, support and prayers.
Love is always...
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